Alleviate their suffering

It is essential that the government establishes a sustainable funding mechanism to ensure continued medical treatment and support, upholding the rights of rare disease patients. In India, an estimated 70-96 million people are living with rare diseases — conditions that affect a small percentage of the population but have a huge impact on those diagnosed. Around 80% of these diseases are genetic, and nearly 70% begin in childhood, often leading to severe disability or even early death.